Impact of caregivers' unmet needs for supportive care on quality of terminal cancer care delivered and caregiver's workforce performance

Sang Min Park, Young Jin Kim, Samyong Kim, Jong Soo Choi, Ho Yeong Lim, Youn Seon Choi, Young Seon Hong, Si Young Kim, Dae Seog Heo, Ki Moon Kang, Hyun Sik Jeong, Chang Geol Lee, Do Ho Moon, Jin Young Choi, In Sik Kong, Young Ho Yun

Research output: Contribution to journalArticlepeer-review

61 Citations (Scopus)


Goals of work Family caregivers play an important role in caring for cancer patients, but the impact of caregivers' unmet needs on the quality of end-of-life (EOL) care they deliver and on their workplace performance are less understood. Patients and methods We identified 1,662 family care-givers of cancer patients who had died at any of 17 hospitals in Korea during 2004. The caregivers answered a telephone questionnaire about needs that were not met when they delivered terminal cancer care and how those unmet their needs affected their workplace performance; they also answered the Quality Care Questionnaire-End of Life (QCQ-EOL). Results Compared with caregivers who did not have unmet needs, caregivers who had unmet needs for symptom management, financial support, or community support showed poorer QCQ-EOL scores (P<0.01). Caregivers who had unmet needs for financial support (adjusted odds ratio (aOR)=7.55; 95% confidential interval (CI) 3.80-15.00), psychosocial support (aOR=6.24; 95% CI 2.95-13.05), symptom management (aOR=3.21; 95% CI 2.26-4.54), community support (aOR=3.82; 95% CI 2.38-6.11), or religious support (aOR=4.55; 95% CI 1.84-11.26) were more likely to experience work limitations. Caregivers of patients receiving conventional hospital care were more likely to have unmet needs for symptom management (aOR=1.21; 95% CI 1.00-1.47), psychosocial support (aOR=1.99; 95% CI 1.37-2.88), and religious support (aOR=1.73; 95% CI 1.08-2.78) than those of patients receiving palliative hospice care. Conclusions Caregivers' unmet needs negatively affected both the quality of EOL care they delivered and their workplace performance. More investment in caregiver support and public policies that meet caregiver needs are needed, and hospice use should be encouraged.

Original languageEnglish
Pages (from-to)699-706
Number of pages8
JournalSupportive Care in Cancer
Issue number6
Publication statusPublished - 2010 Jun
Externally publishedYes

Bibliographical note

Funding Information:
Acknowledgment This work was supported partially by the 2005 Korean National Cancer Control Program by the Ministry of Health and Welfare, Korea, partially by Grant No. 0710730-1 from the National Cancer Center, Korea, and partially by Takemi program in international health at Harvard School of Public Health. We thank Michael R. Reich and Marc Mitchell for their cooperation and assistance.


  • Caregivers
  • Terminal cancer care
  • Unmet need
  • Workforce performance

ASJC Scopus subject areas

  • Oncology


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